oh you poor darling, I was travelling last week and didn't see this update. I am so so sorry, but you know, there are 2 things to consider: first a doctor will try to avoid any surgical intervention if it's possible because it's still a general anaesthetic and it carries its risks of course. Then you have frozen blasts, so while for you the time is passing, they are perfectly fine and healthy exactly like you left them. Also you know, something very similar happened to me... before starting everything I saw this consultant who recommended a lap&dye to make sure all was ok. That checked out perfectly fine. then after a series of ectopics and failed cycles i insisted to have one more time a check inside. this time the clinic sent me to their own trusted consultant who did a diagnostic hysteroscopy (the first guy just looked in the abdomen, injected a dye through the uterus and saw it spilling out, but never looked inside the uterus!). Well...he found significant scarring and adhesions which never showed up on a scan and nobody thought to check because I had this lap and dye! I was so gutted, so much time lost (like 3 years)...and then i went for the FET of my last 6 day blast (not even a 5 day one!) and i got my little one!! So what i'm saying is that while now it's unbearable, it will all be worth it once you have your baby. Hugs!!
Oh Mod1, it was so nice to read your message. I'm so sorry you went through all that, and lost all that time, gosh 3 years!!! It must have been extremely tough! We really have to advocate for ourselves and it definitely paid off in your case. By the way, did you loose both your tubes due to ectopics? I agree, I have to have this tube sorted to give the best home for my embryos. My gutt has been telling me for a long time that it's an issue there, I do have some dull pain there for years. This surgeon has very impressive profile and my clinic sends most their patients to him, I feel good about him. He will also do a Hysteroscopy while I'm under, so happy to hear that can also give some further answers. I have my consultation booked for 28 May, and hopefully lap a few weeks after that. Then I think we are still going ahead with the endo biopsy cycle before FET so a lot of boxes will be ticked before the next embryo is coming home
I do feel a little better since my last vent, I'm trying to focus on the positives of this all, one of which is that with no tubes, the chances of an another ectopic will be slim, I hope :/
Thanks for listening once again, and I'll be back with more updates
Oh so good to hear you much more positive and great you will get a hysteroscopy too! Yes I lost both tubes, and you know, we now have two children and will not have any more, so we don't have to worry at all about something happening a bit of a silver lining!). You can check with the consultant if he can make sure the other tube stump (what's left) is neatly clipped close to the uterus, so that all risks are super minimised. 28th of May is super soon, and you can always ask to be put on a cancellation list, it may be even faster! Do keep me posted, hugs!
Hi Mod1, I hope you're well. Just a quick update, I had my surgery last Thursday and all went well. Both tubes neatly removed and he also removed a cyst from my left ovary. Womb is all clear and he said we should have a good chance after this. I'm still bleeding so I think it brought my period forward so will have to wait another month before the biopsy cycle, then the cycle after should be FET. So looking at transfer in September, which feels so so long away but hopefully that will be the one! We are thinking to do a natural FET with just a trigger shot to induce ovulation but I will discuss this with the consultant. Were your successful FET's medicated?
Hi! so good to hear from you and i'm delighted all went well with the surgery, you are now definitely ready to go! Did he do a D&C also during the surgery? if so, that may be the bleeding. If he didn't do it, it may well have brought the cycle forward a bit, but really now you can enjoy and relax for the summer (hopefully with some good sunny days!) without a worry in the world. I think it's a good thing. All my cycles were medicated. i think my clinic preferred to have full control of the situation and I was very happy with it. See what your consultant is suggesting, things may have evolved of course since I did mine, I can't believe it was 9 years ago already! i absolutely cannot wait to follow your updates. I'm here as always, hugs.
Just thought I give you an update as another month is gone.. Well, not much to update really, except I'm still waiting to start the meds for the biopsy cycle. I've been having spotting for nearly a week and my lining is almost thin enough but not quiet. The nurse told me today that I can either wait or take Norethisterone (which is just progesterone) for 5 days, then after stopping, I will get a period in a few days. Of course I choose the pill as I'm just sick of waiting at this stage... So I should get a proper bleed next week and dates will be confirmed then. I think I might just be able to stick to the original timeline, which was biopsy on 1st August and transfer on 30 August. But will see where I am at in a week. The start line keeps pulling away from me - it's frustrating. But what's a small extra delay after all the set backs so far?! On a positive note, my prolatcin levels came back normal and I asked for a copy of the surgery notes that the surgeon sent to the clinic. All good, normal endometrium, and no endometriosis (which was my other secret fear). Oh, and we are going with medicated cycles - like you said, the full control is much less stressful!
So great to hear from you, and I would have gone exactly the same way, let's get a handle of the timing and bring uncertainty the minimum! I'll be here waiting to hear how it all goes. It's great you got the surgery notes, i think it's so much better when you can read yourself how things look (a bit more control!). I very much look forward to your next update, hugs!
Small update from me: After the rocky start of my period last month, I did get it eventually and went through the biopsy cycle. Got the result today: no infection, which is good, but receptivity was low, so I'll be on an extra day of progesterone for the FET, and instead of just the gel, I'll be on injections too. Some immune markers were slightly elevated too, so the doctor is adding steroids and intralipids to the mix. He said he is not 100% sure they are necessary, but he wants to throw the kitchen sink at me. I like the sound of that! So I'm starting the meds for FET on Sunday and transfer is planned for 30 August. I'm excited and nervous at once, definitely like how much more we are doing this time around. Plus the pesky tube is gone too. I so so so hope this will work xxx
That's so brilliant! and you know, for as much as i hated the progesterone injections, i just wanted to have them. And like you I wanted the kitchen sink and some thrown at me! if we do it, we do it properly, no faffing about!! I'm here all the time for you!
Dear Mod1, I have some good news Compared to the last transfer, everything felt different from the day of transfer. So I decided to take a test over the weekend and it came back positive! I took a few more and the lines are darker each time thankfully. I know it is very early days and we will have to see a good hCG number that will double and of course the first scan to see if it's in my uterus, but we are over the moon to be where we are today! Fingers crossed it will all go well from here
Hi Mod1, so everything is looking good so far, my hCG was 600 on Wednesday and today it's at 13000. They also offered a scan at 6.5 weeks for reassurance but it certainly doesn't look like an ectopic anyway. I'm so relieved, I feel like those bad memories are slowly fading. Thank you for all you support and inspiration throughout the past months, women like you got me through this and kept me going. I remember my message to you, and what a dark place I was in then. I can't believe where I am today, it's truly magical!
Hi there, Just been reading your whole experience with ectopic pregnancies and then having ivf.. it has been a long tough road for you but I see there is so much light at the end which is fantastic and gives me hope..I seem to be going the same way as had ectopic pregnancy post fresh five day transfer of embryo... I’m just wondering what ivf clinic are you attending ? As they seem to be so thorough... I’m wondering is the injection form of progesterone better than Crinone..... have been on crinone twice now and I’m wondering if I changed would it help. Hope you don’t mind me asking . Xx
so we do not normally recommend clinics as experiences are very individual. What I did was to look at their statistics, success rate etc. Also you may prefer a more "natural approach" to IVF or a more aggressive one (I was totally in favour of aggressive!), and so different places may offer different things which are better for the person.
Hi there, I am new to this page and I am grateful there is such a page. Thank you.
My story is as follows, 2 years ttc, went to fertility clinic August 2018, had unexplained infertility. Did all the timed sexual intercourse, ovitrelle injection, then letrozole with no result. April 2019 had first round of ivf ended in chemical pregnancy. Then had second round of ivf in August 2019 got 1 top quality day 5 embryo transferred, 5 weeks 3 days had sharp pain in left side, went to early pregnancy unit, eptopic pregnancy diagnosed, admitted to hospital repeat hcgs done 5 days later had ruptured eptopic pregnancy so had laparoscopy with removal of left tube. Consultant stated I had grade 2 endometriosis and the other tube is healthy. I never had any symptoms of endometriosis and he couldn’t do anything with it as it was on my bladder ... is our chance of conceiving naturally gone now 🙈I know miracles can happen it’s all so stressful and upsetting. I still have a sharp pain in my left side 14 days post procedure when I bend or sit upright, and new onset lower back pain - does anyone know if this is normal ? I’m ok walking and lying flat . Also just wondering when can we start trying again ? Do we have to wait till I get my period or what’s the story? I will only ovulate every second month is this correct? I still have one frozen embryo- can anyone tell me when is the best time to transfer is ? I am praying to god this will work out for us this time as don’t think I can deal with more disappointment... I would be grateful for any answers to the above xx